Contribute Your Story

Have a story you would like to share? Every one of us has had a unique breastfeeding experience with our cleft affected child. Whether you have breastfed your baby fully, partially, at the breast, via a bottle or other method, or you wished to breastfeed your baby, but didn’t, for whatever reason – your story is a precious resource for other new parents.

Stories don’t need to be long (500-750 words is preferable). You might wish to include;

  • the kind of cleft your baby has/had
  • how/when the baby’s cleft was diagnosed
  • whether you received breastfeeding information
  • whether you were encouraged/supported
  • how you went about feeding (both the early days and beyond)
  • how surgery impacted your feeding choices
  • how you feel/felt about your breastfeeding experience

Don’t forget to include a photo! (preferably 750 pixels wide or more).

Send to alice.farrow@cleftlipandpalatebreastfeeding.com

I look forward to hearing from you.

Best wishes,

alice-firstname

One Response

  1. Stacy Wheeler
    Stacy Wheeler September 26, 2013 at 8:08 pm · Reply

    the kind of cleft your baby has/had – My daughter had a complete unilateral cleft lip with cleft gumline.

    how/when the baby’s cleft was diagnosed – at birth

    whether you received breastfeeding information – I took a full day breastfeeding class (required) and have a really great lactation consultant (Amanda). The class taught baby-led latch.

    whether you were encouraged/supported – I gave birth at a birthing center in Denver but after the birth we had to both be transferred to the hospital due to some concern about her breathing and I had to be repaired. The lactation consultant in the hospital was not useful (I had allowed my daughter to do baby led latch and she seemed to be doing ok on the right breast but we had issues with the left). The lactation consultant came into the NICU and grabbed my baby by the head and tried to force her on the left breast, cleft lip up. No one was happy. I immediately starting making calls to the ped and lactation consultant (Amanda).

    how you went about feeding (both the early days and beyond) We received a prescription for donor milk (we were also given a few jars in the hospital). My Amanda set up a plan with me to pump everytime my baby ate and we met with her 5 days after birth. I would pump and my husband would give her the bottle. We also gave her the colstrum I produced and my milk as soon as it came in. When we met with Amanda, who took a pre weight in mLs and then helped with some positioning and I breast fed my baby. We took a post feed weight and she had transferred nearly 2 ounces! I continued to pump after nearly every feed for a month to ensure my supply stayed up. But my daughter was a champ at breastfeeding and only needed help with positioning on the left breast. It took her 5 days to latch again after her lip repair. Both of us enjoy our nursing relationship.

    how surgery impacted your feeding choices. Our surgeon allowed her to breastfeed immediately after surgery but also provided a “hummingbird” feeder (there is an actual name for it but I don’t know it). We used that until she could latch (5 days later).

    how you feel/felt about your breastfeeding experience; Everything was stressful at the beginning, but I imagine that it is for most. But I hate the pump and love that I can nurse.

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